I am happy to report that "Children and Young Adults with Muscular Dystrophy: An Annotated Bibliography" is available on the Muscular Dystrophy Association's website. The Annotated Bibliography is the first bibliography of books by and about persons with muscular dystrophy, according to the MDA. Funding for the annotated bibliography came from a Carnegie-Whitney Award from the American Library Association. Many of the books are about Duchenne muscular dystrophy.
I also have an opinion column, "Why We Need Books about People Like Me", in the Spring 2010 issue of Quest, MDA's national patient magazine. The article introduces the Annotated Bibliography.
Jacob Gapko is a Ph.D. student in library and information studies at the University of Wisconsin-Madison with DMD.
